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Home > "A" Clinical Trials Conditions > Alopecia Areata Registry  Alopecia Areata Registry
Alopecia Areata Registry
For Condition: Autoimmune Hair Loss,Alopecia Universalis,Alopecia Areata,Alopecia Partialis,Alopecia Totalis
Status: Recruiting
Sponsor(s): National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) ,
Synopsis: Alopecia areata is the loss of hair in oval patches that can proceed to loss of all hair (alopecia totalis or universalis). The purpose of the registry is to collect patient information and blood samples from people with alopecia areata.
Details: Alopecia areata is a fairly common disease in which hair is lost either from part of the scalp, all of the scalp, or the entire body. It is thought to be an autoimmune disease and in some cases the disease is hereditary. The Alopecia Areata Registry will collect information and blood samples from clinically well-characterized patients with these three forms of alopecia areata: alopecia partialis (patchy loss of the scalp hair), alopecia totalis (total loss of all scalp hair), and alopecia universalis (complete loss of all hair everywhere on the body). This will be a collection of patients both in multi-generational families and in sib pairs with controls. Information from these patients will be used to search the human genome for disease-associated loci and/or genes. Researchers interested in doing pathophysiology or treatment studies of this disease will also be able to contact patients having the appropriate form of the disease for the studies in question. Patients who have been diagnosed with alopecia areata by a dermatologist will be eligible for the registry. Patients will fill out an information form online (alopeciaareataregistry.org). Patients who have a family history or specific types of alopecia will be invited to participate in a more detailed questionnaire and physical exam and have blood samples drawn.
Eligibility:
Study Type: Observational, Natural History, Cross-Sectional, Defined Population, Retrospective/Prospective Study
Minimum Age/Maximum Age: /
Genders: Both
Protocol Entry Criteria: Inclusion Criteria - Diagnosed with alopecia areata by a dermatologist - United States resident
Total Enrollment: 2500
Location and Contact Information:
Overall Study Official:
MadeleineDuvic, Principal Investigator, M.D. Anderson Cancer Center
Columbia University, 630 West 168th Street, VC15 *Recruiting*
New York City, New York, 10032
United States
Recruiting Carol Coppola 212-305-6953
University of Colorado, Denver, 4200 East ninth Avenue, B153 *Recruiting*
Denver, Colorado, 80262
United States
Recruiting Pat Somerset
University of California, San Francisco,350 Parnassus Avenue, Suite 505 *Recruiting*
San Francisco, California, 94117
United States
Recruiting Catherine Chen 415-476-3638
M.D. Anderson Cancer Center, Houston, 1515 Holcombe Blvd. *Recruiting*
Houston, Texas, 77030
United States
Recruiting Kathleen Hunzicker 713-794-1442
University of Minnesota, Minneapolis, 420 Delaware Street, MMC 98 *Recruiting*
Minneapolis, Minnesota, 55455
United States
Recruiting David Lee 612-625-8625
Additional Information:
Study ID Numbers: NIAMS-097;
Study Start Date: November 2001
Record last reviewed: March 2004
Additional information available at: clinicaltrials.gov
Clinicaltrials.gov Reference link: NCT00069589
Other Alopecia Partialis Studies:
1. Alopecia Areata Registry
Related Studies:
Other Alopecia Partialis Clinical Trials
Other California Clinical Trials
Other San Francisco Clinical Trials
Alopecia Areata Registry
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